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Overcoming a loss by 1000 deaths

I have used a guestbook application to allow you to leave comments and feedback concerning my book. As the book is about the real experiences of real people, I wanted a way for the real people who have read the book to share out how it has helped them, provided support and hope and maybe even something of their own story.

Click on sign the guestbook to leave your own feedback and feel free to comment to the feedback given by others as open discussion is such an important support tool!

Overcoming a loss by 1000 deaths feedback and discussions
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25) Denise 
Location:
Oregon Location
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Monday, 24 July 2017 12:27 PM Host: c-24-20-179-188.hsd1.or.comcast.net Write a comment Permalink

This book resonated with me in so many ways. Katrina has shared the ALS/MND with FTD story so well, and how it impacts the spouses. In many ways, our stories are parallel. Katrina's story helped me to realize and understand that my spouse's FTD started so much earlier than I had believed. It helped me to understand my own feelings and struggles. It's been 21 months since I lost my spouse to ALS/FTD. I am still redefining myself, but what I lived through forever changed me. Thank you, Katrina, for sharing your story.
24) Sam Swinburne 
Location:
Melbourne Australia Location
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Monday, 22 May 2017 02:53 PM Host: n1-43-255-42.mas2.nsw.optusnet.com.au Write a comment Permalink

This book really made me think about so many things I would push aside in my daily life! THANKS, it will help many.
23) Stephen Alomes 
Location:
Melbourne Location
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Monday, 8 August 2016 06:06 PM Host: ppp118-209-69-72.bras1.mel11.internode.on.net Write a comment Permalink

A wonderful book. Engaging and powerful as the author, Katrina Jeffrey, confronts the personal experience of how love allowed her to care for her husband with MND and related stresses. A tribute to human sensitivity and strength.

Adjunct Professor Stephen Alomes, RMIT University,Melbourne,writer and MND/ALS carer
22) Judy Browning 
Location:
Palm Beach QLD Location
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Saturday, 9 July 2016 06:59 PM Host: cpe-172-192-177-10.qld.foxtel.net.au Write a comment Permalink

Hi Katrina,

This is the message I sent to you today on messenger,

"Omg love. Finished your book. I was in tears within the first few pages. I know it is said that in life we are only given what we can handle, by wow, you've had yours!! Thank you so much for writing the book, so honest and raw. I am biding my time for the right moment to hand it over to my sister and brother in law. Xxx"

Katrina and I go waaayy back...to high school in fact. If you knew back then the challenges you might be faced with in your life.....wow.

My first awareness of MND was through the ILS ice bucket challenge on FB. I'd never heard of it before. It was whilst I was in the midst of organising our high school reunion that I found Katrina on FB. I was all geared up to do the Walk to DeFeet MND in Lismore but the weather had other plans...

I read the introduction to her book a few months ago and was very keen to read her whole story. I had only a small inkling of how much their love was to be tested and am totally humbled by Katrina's love and dedication to her husband and soul mate, Chris Jeffrey.

My younger sister has been diagnosed with Mantle Cell Lymohoma and has just started her chemo journey. When the time is right I will pass in Katrina's book to my sister and her family.

Much love
Judy xx
21) Aliison Kelly 
Location:
Tullera, Northern Rivers Location
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Monday, 4 July 2016 05:54 PM Host: 124-168-135-12.dyn.iinet.net.au Write a comment Permalink

With no personal experience of ALS/MND your book is not something I would normally pick up but as I know you are a local writer I wanted to read what you had to say. I thought it might be a book that I slowly read over some months but from the first page I was hooked and remained that way throughout the whole harrowing journey the two of you went on. I couldn't understand why you put up with his bad behaviour and then finally understood near the end just what real love looks like when faced with one of life's most horrific challenges. I never met Chris but through your words have grown in my appreciation of what a human is willing to endure to get the most out of their life all the way through to the end. What a unique couple you were and now alone I can only wish you joy and happiness for the rest of your life Katrina. I hope this is not your last book either as you have a unique voice that shone in your story telling. Love at it's best. What a story! Thanks for sharing.
20) Jenny Leunig 
Location:
Goonellabah Location
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Thursday, 9 June 2016 03:07 PM Host: DC-86-204.bpb.bigpond.com Write a comment Permalink

A wonderful book telling the story how it really was. Katrina, I congratulate you on relating the good, the bad and the ugly. A must read for everyone, because at some stage in our lives, most of us will become carers for a loved one. Highly recommended.

Katrina Jeffery Thursday, 23 June 2016 08:06 AM
IP: 1.43.104.39
Thanks for your feedback Jenny and recommending my book. You are so right - at some stage in our lives, most of us will become a carer for a loved one for some kind of serious or terminal condition and this book may be of help in these situations
19) Becky Teasdale 
Location:
North Carolina, USA Location
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Sunday, 29 May 2016 10:17 AM Host: nc-76-3-223-26.dhcp.embarqhsd.net Write a comment Permalink

Beautiful and brutal. Katrina Jeffery takes you inside the love story she never expected and describes in intimate detail the devastation that ALS (or MND) wrecked on her fairytale marraige. I started reading several times, but it wasn't until I took a week away from caring for my husband that I was able to finish this book. A bit over two years into our journey with ALS, I found Overcoming Loss by 1000 Deaths to be the the most truthful, informative, and terrifying account I've read of what this monster can do to even the smartest, most capable, and most loving of families. I say families because, as Katrina shows us, ALS affects everyone it touches--patients, caregivers, family and friends.

This book informs, educates, and inspires. It gives the raw, unvarnished truth of life with the disease and the unimagined struggles that await those affected by it. It also offers hope in the form of understanding, and provides a roadmap for separating the disease from those affected by it.

Katrina has provided a virtual lifeline to me and tocountless others living with and recovering from the losses caused by ALS. This book is a natural extension of her online and in person support to others of us who battle this monster and the horrors that it inflicts.

Katrina Jeffery Monday, 30 May 2016 05:41 PM
IP: 1.43.104.39
What an honour it is for me to be able to provide support to others who are facing so much of what I faced. For me, being able to now support others helps me to make sense of all I learned while caring for Chris.
Indeed, it is so important to separate the person from the disease, and thereby always love the person.
18) Melanie 
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Friday, 27 May 2016 05:54 PM IP: 153.107.193.211 Write a comment Permalink

This was a book I was almost reluctant to read knowing that it was a no holds barred description of a tragic end to a wonderful love story of two very remarkable people. But from the moment I started Katrina's flowing prose just made it almost impossible to put down. She takes you into an intimate world of love and then shared grief, pain and loss. As the illness progresses and takes more and more away from Chris Katrina shares her shock, her struggle to understand and to try and manage this awful situation. I felt with her the roller coaster of events as things got worse so quickly with no time to adjust. Her honesty in detailing the struggles and the ups and downs, often with a great sense of humour is what impacted me so much. This is a book for anyone caring for someone with a terminal illness, not just ALS. It is a reminder to all of us to treasure the good days and to know that even in the darkest days and nights there are people out there who can understand and support us. It is partly a guide,partly a memoir and generous in sharing this enormous journey with us. Many of us would have no idea what a disease like ALS could mean and I have the utmost respect for all sufferers and carers who have had to face this monster down. Katrina has shown that this is possible with courage, determination and using all her inner resources . Chris will be missed by his family always but this book is a wonderful testament to his life and his memory.

Katrina Jeffery Monday, 30 May 2016 05:39 PM
IP: 1.43.104.39
What beautiful words Melanie!
"It is a reminder to all of us to treasure the good days and to know that even in the darkest days and nights there are people out there who can understand and support us."
Thank you for finding this meaning in my story.
Indeed it is a testament to his life and memory :)
17) Natalie Cooke 
Location:
Eastbourne, UK Location
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Friday, 20 May 2016 11:33 PM Host: webmail.pfgl.co.uk Write a comment Permalink

I was caring for my father who had MND at the same time as Katrina was looking after her husband. In many ways their progression with the disease was quite similar.

Katrina and I 'met' on an online support group. A safe place for us, as carers, to share what we were going through whilst our loved one was taken, piece by piece, day by day by this disease.

Katrina was a huge support to me. Sadly my father died just a couple of months before Chris.

Reading the book was particularly hard for me as it brought so much of it back. It is an amazing book and truly shows how difficult life is when MND is involved....no gloss just searing honesty.

A must read and I treasure my signed copy.

Katrina Jeffery Friday, 27 May 2016 02:32 PM
IP: 1.43.104.39
In truth it was the mutual support with people like Natalie when I was caring for Chris, that got me through. Some of us have kept in contact and continued new kinds of friendships, while others have gone off in different ways as their new life shapes have developed.
Regardless, there is an incredible place in my heart for the many heroic people I came to know during that time.
16) Wayne Dobbs 
Location:
Lismore nsw Location
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Wednesday, 18 May 2016 07:01 PM IP: 1.144.96.152 Write a comment Permalink

Such a raw how it is book with no sugar coating. I lived through the whole book as if I was involved in it. I have never experienced anything like what has happened but the last chapter took the longest time to read as I was to busy wiping away tears. So much inspiration from a very remarkable lady. Much love her way. To try and understand something as horrible as this disease is i can't comprehend.
15) Wayne Dobbs 
Location:
Lismore nsw Location
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Wednesday, 18 May 2016 07:01 PM IP: 1.144.96.152 Write a comment Permalink

Such a raw how it is book with no sugar coating. I lived through the whole book as if I was involved in it. I have never experienced anything like what has happened but the last chapter took the longest time to read as I was to busy wiping away tears. So much inspiration from a very remarkable lady. Much love her way. To try and understand something as horrible as this disease is i can't comprehend.

Katrina Jeffery Wednesday, 18 May 2016 07:05 PM
IP: 1.42.188.161
Wayne, your response as a real person reading the story of another real person has totally touched my heart!
You now have a little comprehension by being involved in my story as you read.
Your honest feedback is very much appreciated - I wanted to write a book that would take people right inside the whole situation, and your words tell me that I did that!
14) Jenny Dowell 
Location:
Lismore Location
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Tuesday, 22 March 2016 04:42 PM Host: 117.195.148.122.sta.dodo.net.au Write a comment Permalink

I finished the book a little while ago. Wow what a read. Harrowing in parts and so very raw. It will stay with me for a long long time.
I was particularly pleased to see you write about the decision to write all the angry stuff and that your counsellor helped name the aggression Chris expressed to you almost relentlessly.
For him and you to come to a place of peace is a wonderful end point.
Thank you so much for the whole book- the good, the bad and the downright ugly stuff.
I'm sure it will help many others cope with the reality of a terminal illness.
Regards and respect

Katrina Jeffery Friday, 29 April 2016 09:56 AM
IP: 1.43.76.93
Jenny thank you so much for giving your response to reading my book.
It was harrowing, and yet that is what made me determined to tell the story so that others can know they can survive and even overcome.
I truly hope the book will give many others the ability to cope, and one day there will be a cure!
13) Donna Byer 
Location:
Tuckurimba NSW Location
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Sunday, 21 February 2016 09:41 AM Host: ppp121-44-5-154.lns20.syd4.internode.on.net Write a comment Permalink

Finally I finished ur book at 1am in the morning! As others have said it was a page turner. Wow. A tough gig. So glad Chris' final days were so precious for you both. Such an honor to be there as the significant other right to the end. Having cared for my terminally ill husband I know how grateful I was to be his constant throughout the early days of his diagnosis, the life between, and his subsequent death. Poor Chris he did it really tough eh. And you hung in there under extremely difficult circumstances. It's amazing how resilient we are isn't it, how we continue to pull something from deep within ourselves. After that you can do anything. The fact that story is out of your head and on the page is a cleansing thing. Clear room after carrying a load of painful detail. Yet knowing the story is safe and sound in a book to refer to whenever u need, and to help others in similar situations, and educate others interested in what Carer's do. Well done Katrina you did the very best you could do; a lot more than many others would be able to do. You can make time for some of own dreams. None of us know what is around the corner. Today is all we have. Love and blessings, Donna xxx

Katrina Jeffery Friday, 26 February 2016 04:27 PM
IP: 1.43.76.93
Thank you for sharing how the story resonated with you as you have been through the caring role and losing your own husband.
12) marianne 
Location:
lismore Location
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Friday, 12 February 2016 12:29 PM IP: 203.5.105.76 Write a comment Permalink

Just felt like coming and giving you a big hug after reading such a coragous book

Katrina Jeffery Friday, 26 February 2016 04:22 PM
IP: 1.43.76.93
thank you for commenting Marianne - I'll take it as a virtual hug.
11) David Wallace 
Location:
Gladesville, Australia Location
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Friday, 5 February 2016 04:08 PM Host: 58.137.233.220.static.exetel.com.au Write a comment Permalink

"Overcoming a loss by 1000 deaths" is a book that is powerful, absorbing and inspiring in which Katrina describes how she and Chris struggle to understand what is happening and how she comes to terms with “life, love and loss, caring for Chris and watching both his body and his personality being eroded day by day.”
Katrina's aim of sharing the knowledge and experience she gained caring for her husband, into a book that she hopes will help and support others who might have to embark on a similar journey, has been well and truly met.

Katrina Jeffery Friday, 12 February 2016 12:13 PM
IP: 1.43.76.93
Thank you so much for adding this review.
As someone who works directly with people affected by MND, your review is powerful!
10) BarBara Kosek 
Location:
Pennsylvania, USA Location
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Thursday, 21 January 2016 12:22 PM Host: 50-32-126-62.adr01.dlls.pa.frontiernet.net Write a comment Permalink

I feel Overcoming a Loss by 1000 Deaths should be made available to anyone newly diagnosed with ALS. It should be available reading at ALS clinics, neurologist offices, and libraries.

Reading this book was heart wrenching and painful. All I could think was that I wish I'd had it when my wonderful husband, Malcolm, was given his death sentence. We had no idea what was in our future. This could have helped prepare us for the destruction of our lives. Because this is a personal story, it makes the horror of ALS real, understandable, and poignant. Instead of moving blindly towards the end of my husband's life, I could have been aware of the everyday losses, the changes that are inevitable, the sadness I saw in his eyes.
Katrina Jeffery tells a tale of love, life, and death with bravery and compassion. She bares her soul and shares her pain openly. Her writing is factual yet full of emotion. This book is a very personal gift to anyone who wants to know the truth of living with ALS.

Katrina Jeffery Saturday, 23 January 2016 06:39 PM
IP: 1.43.76.93
Thank you for that thoughtful feedback BarBara.
I would love to see it in every clinic, ALS association etc.
I'm not sure how to get that going, unless people in the US who have bought the book can approach their local organisations maybe?
I don't ever see myself making a huge amount of money from the book, but I can already see that the book is touching the lives of many people and that is what it is all about.
If I can help raise awareness of what this disease really is, and how carers can provide the highest level of care, with love, I will reach my true goal!
9) Brad 
Location:
Bridgetown WA Location
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Monday, 11 January 2016 12:35 PM Host: 106-69-178-204.dyn.iinet.net.au Write a comment Permalink

Hi Katrina,
I picked up your book the day after it arrived and read it all in just two sittings. I was deeply touched by the sharing of your and Chris’ experiences as his disease progressed. There were many times I was crying while I read of your emotional turmoil during that time. I wanted to provide you some feedback, but I decided to read the book a second time before I did so.
Firstly, thank you for making the effort to write the book. It’s a huge effort and I think it will be a great help to those who are facing this horrible journey or know someone close who is. It is, in my opinion, a very sensitive and personal account of a difficult and trying time and could be a great help to others who would like an insight into the PALS/CALS struggle.
Your journey with Chris (as we who know this disease all know) was an unique one, So, whilst I, as a PALS, am experiencing many different things to those you tell us about Chris, there is no doubt about the similarities of the journey. So many of the things you talk about struck a chord with me as I’m sure they would with anyone who is living with this.
I really appreciated you telling us about the mixed emotions and feelings of guilt, and your sense of loss after only such a short time together. As you portray well in your book, others do not see all the things that happen in the same way that the carer does. It can seem to the casual onlooker that things are almost normal when carer and patient know very well that they’re not. So often, people I meet while sitting in my wheelchair will say “You look great”, but they don’t see the fasciculations, the loss of muscle, the stumbling around the house, the difficulty in getting hand to mouth to feed, the inability to put on socks or pant or even scratch an itch. It’s not that I particularly hide these things, but folks are not usually around long enough to see it all occur.
One of the clear messages we got very early in our journey with MND is that the carer is almost THE most important person. I think your book portrays this to the reader,
I appreciated your views on fighting vs surrendering as extremes of position to take with regard to the disease, and I thoroughly endorse your views on acceptance. Also, your statement that “love is not a feeling but an act of will” rings very true to us as we have based our marriage on that truth for nearly 36 years.
Great book, Heartfelt thanks…..!
Brad (PALS, husband of Gemma)

Katrina Jeffery Monday, 11 January 2016 01:28 PM
IP: 1.43.76.93
This feedback means so much for me as I reflect on my reasons for writing this book to help others.
I did not really think so much about what it would be like for someone with the disease to read the book, as I saw it being more for the carers and family of those people.
PALS = Person with ALS
CALS = Carer for someone with ALS
So to receive such deep and insightful feedback from a PALS, has touched me incredibly deeply! To think that this book may actually help PALS as well, is just so much more than I could have imagined.
I am very encouraged by how many people are saying they read the book through twice. To me this is a sign that there was a powerful message in the book. I know that I really got something important out of a book if I need to go back and read it again soon after the first time.

I am honoured that I am able to give back something to those who are facing this hideous disease, those whose lives are so deeply touched by the many challenges it creates.
My heartfelt thanks to you for taking the time to write so much detail Brad.
8) Deborah Mast 
Location:
Dallas Texas Location
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Sunday, 10 January 2016 05:40 PM Host: 99-7-16-150.lightspeed.rcsntx.sbcglobal.net Write a comment Permalink

honored to have read your book. I have read it twice and will most likely go back to it several times for support and help.

Katrina Jeffery Sunday, 10 January 2016 08:47 PM
IP: 1.42.66.240
Thank you so much for saying this Deborah. I've had a few current carers saying this recently - that they have read it twice and will be going back to read it again for support and help.
I think I needed to know that out of the ashes of my despair, something beautiful could grow that could help others. You have just confirmed that for my and I'm so thankful that the book is reaching my goal.
I hope that you will also find the information on this site helpful in practical ways, for the day-to-day stuff of being a carer and what we do.
7) Deety 
Location:
Iowa Location
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Sunday, 10 January 2016 12:09 PM Host: 17.63.32.207.dyn.southslope.net Write a comment Permalink

Listening to and telling others our stories helps make sense of this world, and this world of ALS that far too many of us have found ourselves in needs to have our stories heard, for the sake of those plagued with this horror and for the sake of the caregivers who join the journey. I have felt so isolated in so many ways as my husband's and my previous identities were stripped away day by day. Hearing your story gave me some courage and taught me that we're still who we used to be. Of course I found myself crying as I recongized myself over and over again in these pages. But they were good tears, and I haven't had a lot of those kinds of tears lately. Thank you so much for the power of this story.

Katrina Jeffery Sunday, 10 January 2016 08:51 PM
IP: 1.42.66.240
Oh Deety, you have hit the heart of so many of the issues we face as a carer. The isolation, the stripping of identity as we struggle to give all our love and the highest level of care to the one we love, even as FTD takes that person away.
I am honoured to know that my story can resonate in the heart of those that are facing the same situation. This was my wildest dream, and to see the feedback here that is showing that I could achieve that dream means more to me than anything else could.
Courage is something we can only have if we are indeed afraid. I was fearful to tell my story, I have bared my soul. Yet the isolation must be broken, you are not alone in how you feel, and you will overcome! I know it because I will be beside you through online support. xxx
6) Valerie Chesney 
Location:
Queensland Location
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Wednesday, 6 January 2016 02:15 PM Host: CPE-101-183-154-96.lnse5.woo.bigpond.net.au Write a comment Permalink

Katrina,
Reading your book, I felt such heart aching grief for what you & Chris had been through.
How much more did your hearts ache with grief for your loss & fast progression of this disease.
Writing so honestly of disappointments, losses, exhaustion & feeling helpless as the man you loved
lost his ability to “live a normal life.” Many will draw such strength from your struggles &
decisions to accept what is happening as a fact that can’t be changed but, can be modified & dealt with to some degree.
Expressing your feelings of grief, of Chris’s feelings of fear of the unknown & becoming a burden,
not only to you but, to himself through wrong decisions, whilst fearing the unknown yourself.
Your online friends/supporters/ are priceless as they “walked with you” through the rough times.

Carers too, need to know they need help as grief + exhaustion saps energy & they need as much care
to keep them “healthy”. Your desire to love & care for Chris for better or worse, to give to him
everything within your power, dignity as he lost the ability to care for himself & then each loss
that followed taking more & more away from him. Not to be able to cook, walk, talk, laugh, play with the dogs.
Plan romantic times for you, all these things you loved & then he was gone!
Your support now for MND sufferers/carers/families is so needed as you have
“been through it all” your book a handbook for all those who care for a loved one going through a terminal illness.
I can see why you chose your title as you experienced 1000 deaths as you journeyed with your loved one.
You gave Chris the very best care, love & support, whilst grieving so deeply yourself + his desire to die at home
& cared for him to the last minute.You have been very brave & caring for others in sharing through this book...
I think you are Amazing!

Katrina Jeffery Wednesday, 6 January 2016 03:17 PM
IP: 1.42.66.240
thank you so much for sharing what things came out for you in reading my book.
I appreciate knowing that the things I wanted most to come through did for you - the hope that others who have someone they love with MND/ALS will be able to draw strength from the personal story telling of one who has gone before.
Thank you again
5) Andrea 
Location:
Baltimore Maryland Location
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Tuesday, 5 January 2016 06:58 AM IP: 50.153.191.110 Write a comment Permalink

It's a must read...I lent itto family members and friends and after reading it they called and they said OMG,yeah it gives you a idea of the love between a PALS and their CALS and some of the hell that we are all going through on this horrible journey that ends with us losing our loved ones ..my husband has it and reading the book has helped me a lot,thank you my fellow warrior for writing this wonderful book,oh and grab some tissues you will need them.

Katrina Jeffery Tuesday, 5 January 2016 07:04 AM
IP: 1.42.66.240
I'm so glad you were able to lend the book to other people involved with you and your husband with MND/ALS. Hopefully it gives them a little insight and will help them to support you both
4) Marny Bonner 
Location:
Tea Gardens, NSW Australia Location
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Saturday, 19 December 2015 08:09 AM Host: CPE-121-216-100-105.lnse2.ken.bigpond.net.au Write a comment Permalink

I absolutely could not put this book down! It wasn't just because, through out friendship of 8 years, I had occasional glimpses into some of the critical stages in Chris & Katrina's story, but also because it picked me up and carried me along with a very genuine heartfelt story of love, dedication, acceptance, self-realisation and hope.
THIS IS A VERY IMPORTANT BOOK for every health care professional and anyone associated with diagnosis of any kind of life-threatening illness. I urge everyone to buy 2 copies - trust me, the first thing you will want to do on reading it is to donate one to your local library or health care professional!
In our quest to recover from shock and make sense of this kind of journey we search for solutions, for strategies, for any kind of light to shine on this rockiest of pathways. There is only one I have realised after reading this book; it is the convergence of love and acceptance, THE most powerful strategy of all.
Thank you so much Dear Friend, for shining your light in my direction through this book. xo

Katrina Jeffery Tuesday, 22 December 2015 08:12 PM
IP: 1.43.76.93
For those who have read the book, Marny appears in the credits at the beginning of the book because she has been such a huge support to me for so many years, but particularly during the time of writing and publishing. She jumped into to support the book without even reading it!
This review has truly touched my heart - asking everyone to put a copy in their local library. I know some people are already actively involved in doing this very thing.
I am sincerely grateful that Marny has described the very heart of the book - love and acceptance. Not easy things to come to and stay with, but I hope that this book helps people who are caring for the terminally ill to find this place.
3) Lois de Lange 
Location:
Tinonee, Mid North Coast, NSW Location
IP logged Mozilla/5.0 (iPad; CPU OS 7_1 like Mac OS X) AppleWebKit/537.51.2 (KHTML, like Gecko) Version/7.0 Mobile/11D167 Safari/9537.53
Thursday, 17 December 2015 09:22 PM IP: 1.144.96.245 Write a comment Permalink

Oh my! From the moment I started the very first page I had to keep reading to the end. It was like having you right there next to me, talking to me. What a massive journey. And what courage it must have taken to revisit the whole story and then be willing to share that with the whole world. It must have been so unbelievably difficult for both you and Chris. I now have a much better understanding of what one of our close family members went through with MND around the same time as Chris and your journey. I hope to be able to encourage others close to me to read this book as it is so explanatory in a very practical way. Feelings of being trapped and of guilt are what I experienced, and still feel guilt-wise, when I watched my Mum go through non Hodgkin's lymphoma to the end. And this was after having lost my father to the very same thing. My parents were diagnosed within nine months of each other. I would urge anyone in a similar situation to take a leaf out of your book, and do the research to understand, find support groups to link into, and consider counselling. If I had done those things I might have come through the whole process a bit better. Thank you for writing this book Katrina. I believe it will be of support to many people.

Katrina Jeffery Thursday, 17 December 2015 09:36 PM
IP: 1.42.76.124
Thank you for sharing your own very personal connection to the story. It tells me that I wrote this book for all the right reasons and the meaning of the story has come across.
Thank you also that you are going to share the word out so that it can continue to support many others.
2) Gerardine Connor 
Location:
Crib point Vic Location
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Wednesday, 16 December 2015 01:02 PM Host: CPE-110-148-136-10.vxl8.lon.bigpond.net.au Write a comment Permalink

Katrina, I read your book. I was very excited to read it. It was very easy to read. It gave a very comprehensive and indepth look at looking after a loved one with MND. Sometimes I didn't understand or agree why certain things were done but at the end of the book In my own Support and the postscript gave me a small insight into what living with Chris would be like and what you had to do to survive this monster. I am very proud to know you.
Knowing Chris could be very stubborn. To see him on facebook with the apple peeling machine and to hear the laugh of success is something I will never forget.

Katrina Jeffery Wednesday, 16 December 2015 01:28 PM
IP: 1.43.76.93
Thanks for being the first to comment Gerardine!
I can assure you I was often quite confused about lots of things and the 'why' of many things during the whole time, so it's not surprising you may have found some things confusing :)
1) Katrina Jeffery 
Location:
Australia Location
IP logged Mozilla/5.0 (Macintosh; Intel Mac OS X 10_9_5) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/46.0.2490.86 Safari/537.36
Wednesday, 16 December 2015 11:56 AM IP: 1.43.76.93 Write a comment Permalink

I'm leaving the first message here, firstly to test this section, and secondly to sincerely thank everyone who have purchased or borrowed my book and read it.

I am humbled to be able to help support others by publishing my book and spreading hope to all who come in contact with MND/ALS

Until there is a cure!
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Thank you to everyone who have read my book and taken the time to share their feedback with others. You are helping spread support!
This website has been designed to support CALS - people who are caring for someone with MND/ ALS.
Katrina Jeffery cared for her husband Chris through MND/ALS with FTD and provides these supports from first hand experience.
Copyright 2015. All resources that have been used or quoted provide direct links to the source.